EzyAid –Invention- tube holding device for tube fed patients

Ends on December 31st 2022

3%
$1,405AU
pledged of $50,000AU
24
pledges

Support Campaign

Trial at large NSW Hospital, TGA approval and commercialization to get product to market asap

Funding Goal: 200K (this is what is will cost to get our product to market – the more we raise the faster we can get this product to market. We are trying to make this an achievable goal at $50,000 for our campaign to be successful but we actually need approx $200,000k) 

An Ezy innovative Aid for tube feeding

Who are we?

We are Matthew’s parents Jess and Adam. Our son was born with a rare condition that we now finally have a diagnosis for: MED-13L Syndrome. He is one of approximately 300 children with this condition in the world. 

image

Matty – two weeks old in 2012 at John Hunter Children’s Hopsital Newcastle – Neonatal Intensive Care Unit with sports tape directly applied to his senstive baby skin.

Matty’s condition required him to be tube fed for the first two years of his life to ensure he received adequate food and nutrients. At any one time, 280,000 people across Australia alone (including 80,000 children) rely on a NasoGastric or Orogastric tube for sustenance due to feeding issues associated with premature birth, cleft palate, elderly, cancer, stroke, anorexia, dementia, diabetics, cystic fibrosis, etc. There are millions of tube fed people around the world who require tube feeding.

Why are we seeking help?

Fitting a NG or OG tube can be distressing for the patient and their caregivers. The tape used does not secure the tube well and can cause irritation, particularly when wet.

From our experience, runny noses, sweat and bath time would wet the tape holding the tube in place irritating Matty’s skin and weakening the adhesion. Skin irritation led Matty to pull on the tube, resulting in frequent tube changes sometimes multiples times a day.

Applying the tube and taping it in place required two people, making it inconvenient for us as parents, and traumatic for Matty.

Matty developed a oral aversion to food due to the emotional distress of having hands in his face and the discomfort associated with frequent tube changes.

Our frustration at the lack of good solutions to help us care for our son drove us to design a device that can improve the lives of tube fed patients and their carers.

We are seeking donations to help complete the design and production setup, register the medical device in Australia, and run a clinical trial of the product in the Neonatal Intensive Care Unit at one of New South Wales largest hospitals

This is a critical step in getting the product approved by the Therapeutic Goods Association. Without this approval, the product cannot go into production. 

Our goal is to turn our idea into a sustainable enterprise so that EzyAid can be made available to everyone who needs it in Australia including healthcare facilities and homecare patients.

With enough support we would like to make our product available globally to improve as many lives as possible. Please share with as many family, friends and networks that you can, we appreicate your help from the bottom of our hearts. The more we can raise the quicker we can get our product to market to help those who need it as well as save hospitals time and money. Thank you

Justine Parsons – Clinical Nurse Consultant – Neonatal Intensive Care Unit

“In my role as the Clinical Nurse Consultant for the Neonatal intensive Care Unit of John Hunter Children’s Hospital, I often review new products on the market. I’ve been working with Adam and Jess for some time now with regards to the EzyAid tube fixation device, offering clinical expertise and practical ideas. It has been wonderful watching the development of the product and seeing the commitment and passion that they have for improving care for infants and children requiring long term tube placement. I wholeheartedly believe that the EzyAid has the potential to be a staple product in healthcare facilities, as well as for use in the community. I am happy to continue to support Jess and Adam as they progress this product through to market.”

image

image

image

5 month old Matty playing at home in the pool– the tape holding his tube in-place has become wet and needs replacing as not waterproof. image

Matty finally back home after 7 weeks in hospital and being gravity tube fed expressed breastmilk by Dad (Adam)

imageMatty at 3 months old with his serial casting for his feet, braces for hands and tube fed. 

image

10 month old Matty with Mum (Jess) going for surgery to get his gastromoty tube to make feeding less traumatic and stressful.

image

Matty going for another sleep study 2012 at John Hunter Hospital Newcastle

image

Matty and his beloved dog Frankie at 10 years old today. A happy and loveable boy who loves his food and tube feeding days well behind him. He has a moderate intellectual disability and speech impairment due to MED-13L Syndrome. 

All funds raised will be put towards the project –  anyone that has pledged and would like an “EzyAid” product we can send one to you once they have been ordered.

December 5, 2022

Hello all,

Thank you so much for your support of our campaign to raise funds for our product EzyAid to help improve the lives of tube fed people. Your financial help is so greatly appreciated, especially with the rise of living costs and expenses. Its a hard time to campaign for funds and also being this time of year towards Christmas.

We had another meeting with John Hunter Hospital today regarding our next trial which will be a sustatainability trial and we also have another manufacturing meeting tomorrow with a new manufacturer. Unfortunatley the manufacturer we had found in America is unable to start on our project until half way through next year! So its been a bit of a step backwards for us and now we are on the hunt to find another manufacturer asap.

We are also trying to spread our campaign to businesses who may be interested in sponsoring the trial at the John Hunter Hospital. If you know of any businesses/ companies who may be interested in donating or sponsoring our trial please share our campaign with them.

Thank you again! Jess : )


24 supporters

D 

DEBRA
3 days ago
C 

Clare
5 days ago
 

Anonymous
9 days ago
E 

Erica Harrington
35 days ago
L 

Louise Drinkwater
46 days ago
B 

Bianca
52 days ago
L 

laura mattiazzi
52 days ago
L 

Lesley
54 days ago
K 

Kate
54 days ago
K 

Kim Davis
57 days ago
L 

Lynda Reeves
58 days ago
M 

Michelle Aiken
58 days ago
M 

Marnie Ball
58 days ago
A 

Ana Watts
58 days ago
 

Anonymous
58 days ago
S 

Suzanne
59 days ago
P 

Pete
59 days ago
E 

Emma
59 days ago
J 

Jasmine
60 days ago
T 

Tracey
60 days ago
 

Anonymous
60 days ago
S 

Steven
60 days ago
S 

Sarah Grainger
60 days ago
P 

Paul Drinkwater
60 days ago

No Comments yet. Be the first one to comment!

Please log in or register to post comments